Buildings light up for Neurofibromatosis Awareness Month
Alongside 125 Australian landmarks, sites in Shepparton and Mooroopna were lit up on Tuesday, May 17 in support of Neurofibromatosis Awareness Month.
The Mooroopna Water Tower, Monash Park Tree and Riverlinks Eastbank glowed green and blue in support of the more than 50,000 Australians impacted by NF.
More than 10,000 people are living with NF in Australia and a child is born every three days with the condition.
The Children’s Tumour Foundation estimates that more than 50,000 Australians are directly impacted by NF.
Considered one of Australia’s most commonly diagnosed genetic neurological conditions, NF is a set of three complex conditions that cause tumours to form on nerve cells throughout the body.
These tumours can lead to physical differences, blindness, deafness, learning difficulties, chronic pain, scoliosis and in 10% of people living with NF these tumours can become cancerous.
There is no cure, and treatment options are limited.
As a chronic condition, its unpredictability and the variability of how the condition presents in individuals can disrupt life in several ways and thus cause a significant impact on mental health and emotional wellbeing.
The Children’s Tumour Foundation is calling on members of the community to advocate on behalf of those suffering NF by sending letters to politicians, councillors and local representatives to do more for those suffering with the chronic condition.
Australians, as well as schools, pre-schools and businesses looking to get involved with NF Awareness Month throughout May, are encouraged to visit www.ctf.org.au/outoftheshadows to find out more.